{"id":15568,"date":"2010-09-07T17:19:01","date_gmt":"2010-09-07T21:19:01","guid":{"rendered":"https:\/\/www.ucf.edu\/news\/?p=15568"},"modified":"2010-09-07T17:19:01","modified_gmt":"2010-09-07T21:19:01","slug":"down-sydrome-patients-families-urge-empathy","status":"publish","type":"post","link":"https:\/\/www.ucf.edu\/news\/down-sydrome-patients-families-urge-empathy\/","title":{"rendered":"Down Sydrome Patients, Families Urge Empathy"},"content":{"rendered":"<p>Dr. Jane Gibson, professor of pathology, first invited patients with Down Syndrome and their families to the College of Medicine last year to help medical students understand the lives of people with the condition. The testimonies were so inspirational that Dr. Gibson organized another visit this year.<\/p>\n<p>Amy Van Bergen, executive director of the association, talked to the students about the prejudices and myths associated with Down Syndrome and how improved medical care has increased the life expectancy of patients with the condition from only 9 years in 1924 to over 58 years today. Ms. Van Bergen\u2019s son, Wils, has Down Syndrome but has defied many of society\u2019s misperceptions by graduating from high school, attending college classes and living in an apartment at the University of North Florida. She described the devastation of parents who dream for nine months of having a \u201ctypical\u201d baby and then learn that their child has been diagnosed with Down Syndrome. \u201cOur role, at the Down Syndrome Association,\u201d she said, \u201cis to help give people the dream back.\u201d<\/p>\n<p>La Taasha Byrd, whose 7-month-old daughter has Down Syndrome, told the students that as doctors they must combine their scientific knowledge with a caring heart. \u201cIf you have no empathy,\u201d she said, \u201cyour degree is worth nothing.\u201d<\/p>\n<p>Ryan Popp\u2019s father, Roger, formed the local Down Syndrome Association in 1991, after his son was born with the condition. Ryan has a full-time job, a driver\u2019s license and is learning Japanese, Chinese, Korean and German because he wants to be an international advocate for people with disabilities. Ryan emphasized that patients with Down Syndrome want to be involved in their own medical care and spoke of the importance of early intervention in helping people reach their full potential.<\/p>\n<p>Ryan said he is aware that many people consider Down Syndrome a disability, but \u201cthat\u2019s not going to stop me.\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"Dr. Jane Gibson, professor of pathology, first invited patients with Down Syndrome and their families to the College of Medicine last year to help medical students understand the lives of people with the condition. The testimonies were so inspirational that Dr. Gibson organized another visit this year. Amy Van Bergen, executive director of the association, talked to the students about&hellip;","protected":false},"author":152,"featured_media":15569,"comment_status":"open","ping_status":"closed","sticky":false,"template":"template-twocol.php","format":"standard","meta":{"_acf_changed":false,"lazy_load_responsive_images_disabled":false,"footnotes":"","_links_to":"","_links_to_target":"","_wp_rev_ctl_limit":""},"categories":[6,17],"tags":[14914],"tu_author":[],"class_list":["post-15568","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-community","category-medicine","tag-medicine"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v22.3 (Yoast SEO v27.5) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Down Sydrome Patients, Families Urge Empathy | University of Central Florida News<\/title>\n<meta name=\"description\" content=\"Dr. Jane Gibson, professor of pathology, first invited patients 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