{"id":13228,"date":"2018-02-20T21:49:12","date_gmt":"2018-02-20T21:49:12","guid":{"rendered":"https:\/\/www.ucf.edu\/pegasus\/?p=13228&#038;post_type=story"},"modified":"2021-06-22T18:23:19","modified_gmt":"2021-06-22T18:23:19","slug":"healing-through-understanding","status":"publish","type":"story","link":"https:\/\/www.ucf.edu\/pegasus\/healing-through-understanding\/","title":{"rendered":"Healing Through Understanding"},"content":{"rendered":"<p><em>Spring 2018 | By Suht Wong | Photos by Doug Scaletta<\/em><br \/>\n<span class=\"text-uppercase\" style=\"font-size: 12px;\"><em><br \/>\n<\/em><\/span>Gowned and gloved, Jessica Fernandez leans closer to inspect the cadaver lying on the stainless steel table inside the <a href=\"https:\/\/www.ucf.edu\/college\/medicine\/\">College of Medicine<\/a>\u2019s anatomy lab. She, along with five other medical students, has been assigned to diagnose the cause of death and is given no additional information to go by other than the age and occupation of the person.\u2028 From a distance, she looks like any other medical student, inquisitive but a bit apprehensive about interacting with the cadaver, her first \u201cpatient,\u201d as she inspects the muscles, liver and lungs for telltale signs. She nudges her glasses back into place with the back of her hand, trying not to touch her face with the dissection gloves.<\/p>\n<p>Look closer, and you\u2019ll notice the stool Jessica Fernandez is standing on in order to reach over the cadaver. You might also notice the way her blue scrubs nearly overwhelm her tiny frame.<\/p>\n<p>That scene took place nearly four years ago, during Fernandez\u2019s first semester \u2028in medical school. Today, as she prepares to graduate in May and enter a residency program, Fernandez has continued to defy critics who questioned whether she could keep up with the rigors of intensive study and the grueling clinical hours of hospital rotations.<\/p>\n<p>\u201cI\u2019m small, but I think I\u2019m big,\u201d she says. \u201cSo I act like it.\u201d<\/p>\n<p>[divider][\/divider]<\/p>\n<p><span class=\"gotham-bold text-uppercase\"><strong>At 3, Fernandez was diagnosed with spondyloepiphyseal dysplasia, <\/strong><\/span>a rare genetic disorder that affects bone growth, specifically at the ends of bones and in the spine, resulting in smaller-than-average stature.<\/p>\n<p>At 27, Fernandez stands 4 feet 2 inches tall, her size and youthful face making her appear much younger than her age. And even though her disability may be obvious to others, she never lets it define her. And she certainly isn\u2019t letting it stop her from achieving her lifelong dream of becoming a physician.<\/p>\n<p>While becoming a doctor is a dream of many children, few achieve it. Fewer still \u2028are the number of people with disabilities who become physicians. Approximately 57 million Americans \u2014 nearly 20 percent \u2014 have a disability of some kind, but only around 2 percent of practicing doctors do. And that\u2019s including physicians who developed disabilities after graduating from medical school. A recent study by UC San Francisco and Johns Hopkins found that 2.7 percent of medical students have a disability, \u2028ranging from physical to psychological, though previous estimates were closer to 0.3 \u2028to 0.6 percent. According to a recent article in Slate, \u201cthis makes them one of the most underrepresented groups in American higher education.\u201d<\/p>\n<p>This means that there are more people living with disabilities than physicians who understand their bodies and their lives. Unlike Fernandez, most doctors are less likely to meet a 9-year-old girl with spina bifida, as she did during one clinical rotation, and see themselves in the patient they are treating.<\/p>\n<p>\u201cI know what it feels like to be exposed and nervous on the cold examination table,\u201d she says. \u201cI have been on the other side of the X-ray machine, on the inside of the MRI machine. I want to use my abilities, knowledge and expertise to find creative ways to make my patients\u2019 lives as independent and comfortable as possible.\u201d<\/p>\n<p>Medical school is known for being intellectually rigorous, but when hip and back pain make walking difficult, as it does for Fernandez, it can also make the physical act of navigating hospitals and patient rooms more challenging.<\/p>\n<p>While other students may be able to breeze into a hospital without any extra thought, Fernandez uses an electric wheelchair to help navigate the long hallways, so before she enters a facility Fernandez researches the building layout, the best areas to park, the locations of the elevators and the fastest routes from one ward to another. She prefers not to let her instructors know in advance that she has any physical challenges.<\/p>\n<p>\u201cI once met someone who told me that the only true disability is having a bad attitude,\u201d she says. \u201cAnd that made me think, you know, if you have a good attitude about everything, you can conquer whatever you set your mind to.\u201d<\/p>\n<p>[divider][\/divider]<\/p>\n<p><span class=\"helvetica-bold text-uppercase\"><strong>Fernandez was born in Venezuela and raised by a mother who was a pharmacologist and microbiologist <\/strong><\/span>and a father who was an engineer. Her parents understand her physical hardships and have had to make difficult decisions to provide her the best life possible.<\/p>\n<p>\u201cThe doctors told me when she was 8 months old that she wasn\u2019t growing well for her age,\u201d says her mother, Maria Luisa de Curtis Fernandez. When Fernandez turned 3, doctors advised her family to take her to see a specialist at Boston Children\u2019s Hospital.<\/p>\n<p>\u201cThe diagnosis was not so good,\u201d says de Curtis Fernandez. \u201cThey knew exactly what she had. The doctor told us to get regular follow-ups with specialists.\u201d<\/p>\n<figure>[photo id=&#8221;13381&#8243; title=&#8221;Jessica-Fernandez-Secondary&#8221; alt=&#8221;&#8221; position=&#8221;right&#8221; width=&#8221;100%&#8221;][\/photo]<figcaption>\n<div  class=\"figure\">Jessica Fernandez sits with her mother, Maria Luisa de Curtis Fernandez. Fernandez credits her mother and family with giving her the strength to achieve her dream of becoming a doctor.<p class=\"figure-caption\"><\/p><\/div>\n<\/figcaption><\/figure>\n<p>[blockquote source=&#8221;Jessica Fernandez&#8221; cite=&#8221;&#8221; color=&#8221;&#8221; css_class=&#8221;&#8221;]\u201cBeing able-bodied doesn\u2019t necessarily make you a better doctor.\u201d[\/blockquote]<\/p>\n<p>After many trips to Boston and knowing that their daughter\u2019s best medical care and chance for a future lay overseas, her parents decided to immigrate to Florida when she was 13. They had family living near Ocala, so they settled there, leaving her two older siblings in Venezuela.<\/p>\n<p>Looking back, Fernandez describes her childhood as normal and happy, full of trips to the movies and the mall, days spent at the beach and nights having sleepovers with friends. She describes her teenage self as \u201csmall and mighty,\u201d which helped her win the acceptance and respect of her schoolmates.<\/p>\n<p>\u201cI was blessed that I always seemed to connect quickly with people,\u201d says Fernandez, who often had to explain her condition when people asked questions. \u201cI am lucky that I was never bullied or anything like that. I know people wonder about that.\u201d<\/p>\n<p>Fernandez went on to earn a biology degree from the University of Tampa before entering medical school at UCF in 2014.<\/p>\n<p>[divider][\/divider]<\/p>\n<p><span class=\"gotham-bold text-uppercase\"><strong>\u201cHow\u2019ve you been?\u201d Fernandez asks as she hugs classmates.<\/strong><\/span><\/p>\n<p>The third-year medical students are meeting for a workshop at the Lake Nona campus after spending most of the semester in clerkships at area hospitals. As students share stories of their clinical experiences and catch up, Fernandez asks each of them about their parents, siblings, significant others \u2014 even their pets. She remembers them all.<\/p>\n<p>\u201cIf it\u2019s important to them, then it\u2019s important to me,\u201d she says.<\/p>\n<p>As she walks down the hallway, ranked by peers who stand more than head and shoulders above her, it\u2019s easy to wonder if her wide smile and upbeat personality will be fleeting, but as Fernandez runs into more friends and faculty, her energy and smile never fade.<\/p>\n<p>Her warmth and thoughtfulness do not go unnoticed by her peers or professors. Classmates honored her with a College of Medicine Humanitarian Award last spring for her compassion. She was also voted the person other medical students would want to have care for a loved one. In a program that emphasizes that kind of attention and care before the first class even starts, that\u2019s a huge commendation.<\/p>\n<p>\u201cEmpathy is something you can\u2019t teach,\u201d says fellow medical student Lea Meir. Meir and Fernandez met during their first class and have become best friends over the course of the program, cramming for exams poolside. \u201cI see her go out of her way, reaching out to her peers even while she is in great pain. It\u2019s something as simple as listening to others complain about grades and work stress. Sometimes it\u2019s much deeper, like a family situation.\u201d<\/p>\n<p>It\u2019s not as though Fernandez doesn\u2019t have personal issues to worry about. Last summer, while her classmates were on break, she traveled to Delaware with her mother to undergo a painful surgery to stabilize her cervical spine. It required several weeks of recovery, during which she studied for her board exams from home.\u2028 Fernandez admits that it took her \u201ca really long time to accept my own disability. But as the years have gone by, and now with the incredible patients that I\u2019ve come across, I\u2019ve really come to terms with who I am. My journey has been pretty hard.\u201d<\/p>\n<p>She credits that journey and her experiences as a patient with making her more determined to help others, especially those with bone and spine problems.<\/p>\n<p>[divider][\/divider]<\/p>\n<p><span class=\"gotham-bold text-uppercase\"><strong>Last spring, as Fernandez arrived at the Icahn school of Medicine at Mount Sinai in New York City<\/strong>,<\/span> she clutched a file of notes in one hand and hung onto her mother\u2019s arm with the other. She had been invited\u2028 to speak at the Coalition for Disability Access in Health Science and Medical Education Symposium, a national conference focused on encouraging medical schools to be more accepting of students with disabilities.<\/p>\n<p>There, in front of an audience of scholars, national advocates and medical educators, Fernandez shared a message of ability, not disability. \u201cBeing able-bodied doesn\u2019t necessarily make you a better doctor,\u201d she said. \u201cEmpathy and compassion are just as important as science.\u201d<\/p>\n<p>She said her life experience brings something unique to her patients, and medical schools should embrace enrolling students with disabilities to better serve patients.<\/p>\n<p>[photo id=&#8221;13384&#8243; title=&#8221;Jessica-Fernandez-Robe&#8221; alt=&#8221;&#8221; position=&#8221;right&#8221; width=&#8221;375px&#8221;]Dean Deborah German presents Fernandez with her white coat. (Photo by Suht Wong)[\/photo]<\/p>\n<p>\u201cI can see it in my patients\u2019 eyes when they talk to me, when they are able to relate, when they have someone who has gone through similar experiences listen to them and truly care about making their lives better,\u201d Fernandez told the audience.<\/p>\n<p>Fernandez never set out to become an advocate for people with disabilities in medicine. It\u2019s a role she took on by default, acknowledging that patients and physicians can be skeptical when they first meet her.<\/p>\n<p>\u201cPeople sometimes fear what they don\u2019t understand, so when you sit with them and you explain to them what they\u2019re wondering, and when they see your openness to answer those questions, you just break that barrier right then and there,\u201d she says.<\/p>\n<p>[divider][\/divider]<\/p>\n<p><span class=\"gotham-bold text-uppercase\"><strong>During her white coat ceremony, her official induction into medical school<\/strong><\/span>, Fernandez recalls beaming as her name was called and she walked across the stage. She carefully descended the steps and took her seat with 119 other medical students in the Class of 2018, becoming lost in a sea of white coats.<\/p>\n<p>\u201cI came to UCF because I thought it would be a place where it wouldn\u2019t mold me into being something I am not,\u201d she says, \u201cwhere I could become great at whatever I was truly passionate about.\u201d<\/p>\n<p>After the ceremony, while other classmates celebrated with cheers, hugs and handshakes, Fernandez hung back. She preferred to share the moment quietly with her family, especially her mother.<\/p>\n<p>[blockquote source=&#8221;Jessica Fernandez&#8221; cite=&#8221;&#8221; color=&#8221;&#8221; css_class=&#8221;&#8221;]\u201cWhy would I want to fit in when I was born to stand out?\u201d\u00a0[\/blockquote]<\/p>\n<p>De Curtis Fernandez has played a strong role in Fernandez\u2019s journey to become a physician, and their bond is unwavering. They laugh together like best friends, and Fernandez slips back and forth easily between English and Spanish as they chat. And while de Curtis Fernandez knows her daughter is ready to thrive on her own, she still reminds Fernandez to wear a coat on chilly days.<\/p>\n<p>\u201cShe has grown enough wings to go by herself now,\u201d de Curtis Fernandez says. \u201cThat makes me very, very proud.\u201d<\/p>\n<p>After Fernandez graduates from UCF, she hopes to specialize in physical medicine and rehabilitation. She spent the last few months interviewing at hospitals across the country for residency training. Despite being on the road, she never forgot to call home, relaying the details of her day to her family. Success, she says, is as much theirs as it is hers.<\/p>\n<p>\u201cI simply would not be where I am without them. They have supported me in every single one of my goals \u2014 not only supported me but have sacrificed their lives to see me accomplish my dreams.\u201d<\/p>\n<p>For Fernandez, life and accomplishment are all about people \u2014 the ones you can help and the ones who help you.<\/p>\n<p>\u201cNo matter how hard you think your life is, maintaining perspective is key,\u201d she says. \u201cWhy would I want to fit in when I was born to stand out?\u201d<\/p>\n","protected":false},"featured_media":13375,"template":"","categories":[977],"tags":[654,891],"class_list":["post-13228","story","type-story","status-publish","has-post-thumbnail","hentry","category-feature","tag-college-of-medicine","tag-students","issues-spring-2018"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v22.3 (Yoast SEO v27.1.1) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>A UCF Medical Student Is Proving How a Disability Can be a Strength<\/title>\n<meta name=\"description\" content=\"Diagnosed with a rare genetic disorder, spondyloepihyseal dysplasia, that affects bone growth, as a toddler, Jessica Fernandez is one of only 2.7 percent of medical students in the nation with a disability. 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